HS-REAL: We're studying how treatments work in real life.

Download the Papaya app to participate
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How it works

HS-REAL is a remote-only HS study

Get the App

The Papaya for HS app is available for free on iOS and Android.

Complete Study Intake

Fill out the Intake survey and Hidradenitis Suppurativa Quality of Life (HiSQOL) baseline

Come back weekly

Complete a weekly treatment questionnaire and a monthly Quality of Life assessment

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Research Objectives

Treatment Effectiveness Real-world treatment effectiveness across all HS therapies with comparative analysis of treatment sequences
Treatment Barriers Barriers to treatment access and adherence in diverse patient populations
Disease Trajectories High-resolution disease trajectory data with weekly symptom tracking
Patient Outcomes Patient-reported outcomes in geographically diverse populations

Contribute to HS research from anywhere

Eligibility
  • Age 18 years or older
  • United States resident
  • Smartphone access
  • Any disease severity or treatment status
Participation Benefits
  • Contribution to advancing HS research
  • Remote participation eliminates travel
  • Participate as long as desired
  • Up to $10/month for study-related work
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What does HS-REAL mean?

HS-REAL is the Hidradenitis Suppurativa Registry of Experiences And Long-term Outcomes

  • Real-world patients
  • Real experiences
  • Real treatment patterns
  • Real outcomes

Time Commitment

Initial Survey

15-20 minutes

Weekly Surveys

5-10 minutes

Monthly QoL

10-15 minutes

Duration

Participate as long as you wish

Particiation is voluntary. You may withdraw at any time.

Ready to Join?

Download the Papaya app and enroll in HS-REAL

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You will review and sign a complete informed consent document in the app before enrolling. Please read it carefully.

Questions?

Contact: research@jenevive.health

Study conducted by Jenevive Health
This study has been reviewed by an institutional review board (IRB), which is a committee that has reviewed this research study to help ensure that your rights and welfare as a research participant are protected and that the research study is carried out in an ethical manner.>

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